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Challenges experienced by family caregivers of patients in palliative care: an integrative literature review

  • 606-618
  • 22/02/2023
  • 22/02/2023
Gomes ERS;
Lima AGT;
de Meneses UIBD;
de Aquino JM;
Silva DMR;
Correia ES;
Costa DT;
Silva MTMe;
Santos APR;
Bezerra ABF

Elizandra Regina dos Santos Gomes

Angélica de Godoy Torres Lima

Uberlândia Islândia Barbosa Dantas de Meneses

Jael Maria de Aquino

Darine Marie Rodrigues da Silva

Erika Soares Correia

Diogo Timóteo Costa

Maria Thereza da Motta e Silva

Ana Paula Rodrigues dos Santos

Ana Beatriz França Bezerra

Keywords

Palliative care
Caregivers
Patient Care Team
Family Caregivers

Abstract

Objective: To reveal the challenges experienced by family caregivers of patients in palliative care. Method: This is an integrative literature review study carried out in four databases: BDENF, IBCS, LILACS, MEDLINE. On these bases, two descriptors identified in the DECS were crossed, such as: palliative care and caregivers. To search for the articles, a combination of descriptors was performed with the Boolean operator "AND". Results: The final sample comprised 13 articles published in national journals, with several challenges identified, among which stood out: the imposition to exercise the role of caregiver without personal choice; a change in the routine of life; the complete abdication of one's life due to the care of the loved one; living with psychosomatic symptoms; illness from depression; emotional exhaustion due to living with worsening symptoms and certainty of death; lack of knowledge to perform daily tasks. Conclusions: It become necessary to know the challenges experienced in the daily dynamics of care and to plan actions that contribute to alleviate the suffering and physical and psychological illness of caregivers. This fact requires training, personal investment and detachment from professionals to be with the other, in an ethical and empathetic way, in facing death.

 

DOI: https://doi.org/10.56238/colleinternhealthscienv1-051

Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Copyright (c) 2023 Elizandra Regina dos Santos Gomes, Angélica de Godoy Torres Lima, Uberlândia Iceland Barbosa Dantas de Meneses, Jael Maria de Aquino
Chapter 51

Author(s)

  • Elizandra Regina dos Santos Gomes
  • Angélica de Godoy Torres Lima
  • Uberlândia Islândia Barbosa Dantas de Meneses
  • Jael Maria de Aquino
  • Darine Marie Rodrigues da Silva
  • Erika Soares Correia
  • Diogo Timóteo Costa
  • Maria Thereza da Motta e Silva
  • Ana Paula Rodrigues dos Santos
  • Ana Beatriz França Bezerra

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